ALZ-NET Data

This page outlines ALZ-NET data collection resources, application details and trainings, and data access and request links. 

Case Report Form Packets

A patient’s electronic medical record (EMR) may serve as source documentation as an alternative to paper-source documentation in ALZ-NET. Please consult your local source documentation requirement guidelines for more information. 

• Case Registration and Baseline Data: ALZ-NET Baseline Case Report Form (CRF) Packet – May 2024
• Follow-up Data: ALZ-NET Follow-Up Case Report Form (CRF) Packet – May 2024

Data Collection Applications

ALZ-NET uses three different ACR applications for case registration, ongoing data entry and image submission. For technical assistance with the applications below, email alz-net@acr.org.

Case Registration 

Research Management System (RMS) is the case registration application for ALZ-NET.

 

• Application: RMS
• Training Module: RMS Training

Baseline and Follow-up Data Entry

Medidata Rave serves as the electronic data capture (EDC) for ALZ-NET for baseline and follow-up data entry.

 

• Application: Medidata Rave
• Training Modules:
  • User Registration and Data Entry Overview
  • ALZ-NET eCRF Training PowerPoint, June 2024 Powerpoint (No Voiceover; With Voiceover)
  • Recent Updates – Migration 6 eCRF Training, June 2024 PowerPoint (No Voiceover; With Voiceover)

Image Submission

ACR TRIAD is the secure image and data platform for ALZ-NET that will transfer imaging exams and associated radiology reports of enrolled patients.

 

• Application: TRIAD
• Training Module: Brain Imaging Submission Instructions

Data Access and Requests

ALZ-NET Study leadership is finalizing the data access and request process for ALZ-NET but will be posted on this page when available.

Additional Resources

• An Introduction to Real-World Data & Real-World Evidence: A Virtual Training Series for the Patient Community
  • Sponsored by The National Health Council (NHC) and the Duke-Margolis Center for Health Policy